This site is still under development. Information, features, and some organizational aspects of the data still need further work and will change as we continue building.
Brain Cancer
Primary malignant brain tumor
Support resources include groups, services, and practical help that may be useful for people dealing with this disease.
Support
Online and local support groups | Public | Global
Searchable brain tumor support groups, AYA virtual meetups, hybrid groups, and tumor-specific support options. American Brain Tumor Association Support Groups is a support resource for Patients, available through Online and local support groups. It is included for practical, educational, emotional, caregiver, survivorship, or community support. Review access type, region, activity level, rules, owner, contact details, and fit for the person?
Searchable brain tumor support groups, AYA virtual meetups, hybrid groups, and tumor-specific support options.
Website | Public | United States / online
Patient advocacy/testimonial site supportive of Stanislaw Burzynski and antineoplaston therapy. Burzynski Patient Group is a support resource for Patients and families interested in Burzynski Clinic and antineoplaston therapy., available through Website. It is included for practical, educational, emotional, caregiver, survivorship, or community support. Review access type, region, activity level, rules, owner, contact details, and fit for the person?s needs.
Burzynski Patient Group
PlatformWebsite
AccessPublic
ActivityUnknown
LanguageEnglish
RegionUnited States / online
AudiencePatients and families interested in Burzynski Clinic and antineoplaston therapy.
Owner / ModeratorBurzynski Patient Group
ContactUse website contact form; medical questions directed to Burzynski Clinic.
CancerCare describes its support groups as a way for cancer patients, loved ones, and bereaved people to connect with others. Its site says the groups are led by oncology social workers and can connect people over the phone, online, and in person. This is a general cancer support resource, so it was linked across the currently active disease records as a broad support option.
Imerman Angels describes itself as providing free one-on-one cancer support and personalized mentoring for cancer fighters, survivors, previvors, and caregivers. Because the service is broad and cancer-type matching is part of the model, it was linked across the currently active disease records as a general peer-support option.
Public Mayo Clinic Connect discussion group for brain tumor patients and caregivers. Mayo Clinic Connect Brain Tumor Support Group is a support resource for Patients, available through Online forum. It is included for practical, educational, emotional, caregiver, survivorship, or community support. Review access type, region, activity level, rules, owner, contact details, and fit for the person?s needs.
Public Mayo Clinic Connect discussion group for brain tumor patients and caregivers.
Website | Public | United States / United Kingdom
OurBrainBank provides patient-led glioblastoma information, advocacy, support resources, stories, and data projects for GBM patients and care partners.
OurBrainBank
PlatformWebsite
AccessPublic
ActivityModerate
LanguageEnglish
RegionUnited States / United Kingdom
AudienceGlioblastoma patients, brain cancer patients, care partners, and advocates
OurBrainBank is a patient-led support and advocacy resource for people living with glioblastoma and those caring for them. Its site includes GBM education, resources for newly diagnosed patients and care partners, help-oriented pages, patient stories, advocacy campaigns, and data collection efforts designed to improve quality of life and accelerate research.
The support focus is brain cancer, especially glioblastoma/GBM, with emphasis on patient empowerment, navigating care, community voice, and caregiver involvement.
Notes
Patient-led GBM advocacy and support resource.
Facebook / HealthUnlocked | Public | United Kingdom / Global
Online support groups for people affected by brain tumours, carers, parents, young adults, meningioma, glioblastoma, and other communities. The Brain Tumour Charity Online Support Groups is a support resource for Patients, available through Facebook / Health Unlocked. It is included for practical, educational, emotional, caregiver, survivorship, or community support.
Online support groups for people affected by brain tumours, carers, parents, young adults, meningioma, glioblastoma, and other communities.
Private email list | Private | Global
Private email-list support group for people diagnosed with glioblastoma, caregivers, researchers, and clinicians. The Healing Exchange BRAIN TRUST Glioblastoma Support Group is a support resource for Patients, available through Private email list. It is included for practical, educational, emotional, caregiver, survivorship, or community support. Review access type, region, activity level, rules, owner, contact details, and fit for the person?s needs.
The Healing Exchange BRAIN TRUST Glioblastoma Support Group
